I was channel surfing as usual and chanced upon this programme on the Discovery channel..
It was just starting and it was titled..."The Girl Who Lives In The Dark"
Fascinated by the title itself,I set down the remote control & started to watch
Based in rural China,the subject is based on a 9 year old girl,Wan Lao Yang
Unlike many kids of her age,she was unable to run about outdoors or even go to school
This is because this young girl suffered from a skin disorder that caused large unsightly crustlike tumours to grow on her face..
The situation was so bad that the poor girl was horribly disfigured.
The little girl's condition was left untreated & would have probably been unknown to the world if not for the interest of a doctor from UK.
Wan Lao Yang was diagnosed to be suffering from Xeroderma Pigmentosum..
a very rare,incurable genetic skin disorder.
Sufferers from this disorder have to prevent facing the sunlight or any UV rays.
They also found out that her tumours were cancerous & she'd probably not live for long..with or without surgery.
She did undergo surgery but she was left blind in one eye & lost her nose
Nevertheless her family was content and she was even able to fulfil her desire of going back to school.
Then doctors found out that the cancer had spread to her lungs & she in fact had very little time left to live.
It was a very touching documentary & it would melt even the most hardened hearts to see the little girl,who was always cheerful & full of zest & hope.
I hope you guys would get a chance to see it..probably some of you would have already read or heard about this case..but to actually watch & follow it day to day was a real eye-opener.
It made me think..
Here we are complaining about little discomforts a couple of pimples cause us..
Grumbling about asthetics..
While there are many out there..
Like Wan Lao Yang..
Who'd give anything just to have a complete face.
Even her very own life.
This is me,Patricia